Think Before You Bed Share With Your Baby

Wednesday, March 9, 2016

Bed Sharing Risks, SIDS VS. SUID, And How to Keep Your Baby Safe While Sleeping....

I know parents want to be educated on many aspects when it comes to your children, we don’t want to intentionally cause our children harm and with so much on the Internet we often go to google or some other search engine! The problem is not everything on the Internet comes from a credible source! If you type into google “bed sharing” The first 5 articles that pop up are in order, “ Bed sharing with babies-is it safe?” Which says there isn’t enough evidence to say if bed sharing is deadly or not which is NOT true!!! We have stats on babies who have died from unsafe sleep and one of the biggest risk factors is BED SHARING. It also talks about SIDS but babies who die from bed sharing or other unsafe sleep environments is NOT SIDS! I will get into what SIDS IS and ISN’T later on! These babies are dying from SUID (Sudden Unexpected Infant Deaths) due to unsafe sleep and these deaths are 100 PERCENT PREVENTABLE!!!! Now let’s look at the second article, “ Co-sleeping and Bed sharing” Now this article does speak on the differences between co-sleeping and bed sharing which is good because people use them interchangeably but they are not the same thing! Although, it is hard for parents to decipher between the two when people like Dr.Sears tries to trick parents to say you should co-sleep but what he really means is bed sharing and the media using the term co-sleeping when talking about babies dying while sleeping with a parent. So let me break down how these terms are different....
Co-Sleeping: Is when a baby sleeps in the same room as the parents which is recommended by the AAP (American Academy of Pediatrics) for the first 6-12 months. Another term for co-sleeping is room sharing which I like much better as it explains sharing a room with your baby much more clearer! By room sharing you are able to feed and change your baby and meet any needs that might arise in the middle of the night, but you are still providing a safe sleep space for your baby.
Bed Sharing: Is when a baby sleeps with the parent(s) in the same space like an adult bed! Bed sharing has been proven to increase the risk of SIDS (Sudden Infant Death Syndrome) by putting the baby in a vulnerable state they may not be strong enough to get out of, SUID and ASSB (Accidental Suffocation & Strangulation in Bed). Bed sharing increases the risk of a baby dying while sleeping by 40% and also INCREASES the risk of SIDS not DECREASES it like some articles say! This article also talks about drugs and alcohol being a factor in bed sharing deaths and the truth is more babies die with sober parents than those who are under the influence. You can be sober and your baby can still die while bed sharing. There IS NOT a way to bed share and eliminate all risks and that is why there is no 100% SAFE way to bed share!!!! It also sites James Mckenna who is not an MD but an anthropologist! Would you get advice for your baby from a podiatrist, no? Then why would you trust advice from an anthropologist??? Mckenna says bed sharing is good for mother and baby but he is not an expert on infant deaths related to unsafe sleep so he can not be trusted to tell you where your baby should safely sleep! He studies life not death!!!! Now on to article 3... “Bed Sharing with Baby: Risks & Benefits” Now it does touch on the deadly dangers of bed sharing but then cites Dr.Bob Sears who advocates for bed sharing because it worked for his family, that is not a good enough reason to be responsible for causing a higher spike in our infant mortality! He was quoted as saying this, “ Put yourself behind the eyes of your baby," Dr. Sears told The Huffington Post in 2011. "Ask, 'If I were baby Johnny or baby Suzy, where would I rather sleep?' In a dark lonely room behind bars, or nestled next to my favorite person in the world, inches away from my favorite cuisine?" That’s the problem right there! He gives the impression that if you don’t sleep with your baby, he or she will be all alone when they need their parents! NO DR.SEARS that is why it is recommended to room share!!! He says bed sharing reduces the risk of SIDS when research has actually found the opposite true!!! He also says infant mortality in other countries is lower, that is also false. The death scene investigation is not as comprehensive in other countries as it is here and sometimes even autopsies aren’t done, where it is a state law for an autopsy to be preformed on any child who dies unexpectedly in the U.S.!!! It is sad that Dr. Sears is trying to contradict the experts who know that babies are dying from unsafe sleep and thousands of babies at that! Dr.Sears is very good at giving parents false information. As an MD he took an oath to do no harm, and he is most certainly breaking that oath!!!! Now on to article 4.... “Safe Co-Sleeping Guidelines” and of course this is by PHD James McKenna who is not an expert on where babies are safest while they sleep. If you want to talk to the experts on infant death due to unsafe sleep I encourage you to contact your local child death fatality board, coroner, or medical examiner and they will share with you how often babies die from unsafe sleep. McKenna is not an expert in this area and his advice should be taken with a grain of salt, a very small grain of salt!!! and the last article....”A Dream or Nightmare?” It does talk about the dangers of bed sharing but also talks about how bed sharing has been increasing in the last ten to twenty years but there is a quote I would like to share showing the deadly dangers associated with bed sharing, “ Indeed, the SIDS Center of New Jersey reports there is a five-fold increase in the risk of death among infants who sleep in a bed, even when infants are breastfed and neither parent smokes, drinks alcohol or does drugs."We look at autopsy photos every day," Ostfeld added. "In so many of these cases, a slight change in the sleep environment would have made the difference."


You have to keep going through the 10 pages of links to start seeing the real truth of how deadly bed sharing can be. Anyone can find articles to support pro bed sharers and those against it but you need to consider the source! If it is not an expert on infant mortality then I would not trust it. There are so many articles from bloggers which is not a reputable source. You have to really search to find the truth...except I am going to tell you what the statistics say right here....

A great study that really takes a look at SIDS & SUID and how a lot of what they once thought was SIDS they are now learning was actually due to unsafe sleep. It's very in depth but you will be shocked on what you will read. It can be found here....
https://www.nwsids.org/Exposing%20SIDS.pdf

Some quotes from the study....
"Several states have passed legislation ordering a death scene investigation if an infant dies mysteriously. As a result, the percentage of infant deaths determined to have been caused by “threats to breathing” has risen from just 4 percent in 1992 to 16 percent in 2004."

"Such experts have turned up the volume for national standards after a Scripps Howard News Service study of 40,000 sudden, unexplained infant deaths since 1992 showed that geography, rather than medical evidence, often determines whether babies are found to have died from SIDS, suffocation or “undetermined” causes."

"The mystery of sudden infant death has been solved in a growing number of communities in America. But the answer is seldom SIDS. Coroners who carefully follow federal guidelines while probing the 4,000 unexpected infant deaths nationally each year are discovering a hard truth. Most of these babies are suffocating in completely avoidable accidents, a nine-month investigation by Scripps Howard News Service has found. These infants die because they are accidentally smothered by their parents or other children who sleep with them or because they are placed in dangerous overstuffed sofas or heavily blanketed adult beds. Babies rarely die while sleeping alone in a crib."

"“It is far more common for a child to die of asphyxiation than to die of SIDS,” says Dr. Andrea Minyard, the state medical examiner in Pensacola, Fla. “We say this with a heavy heart. But it is an accurate portrayal of what really is happening. Most of the time, it’s either a parental overlay or unsafe and excessive bedding.”

"“I think we have a clearer picture than many others out there,” said Chief Medical Examiner Dr. Dean Sienko of Lansing, Mich. “The benefits of looking carefully at these deaths have helped us to make recommendations that can save infants. Almost every time, we are finding multiple violations of the safe sleep guidelines.” The study found that 11 coroners using federally recommended best practices when examining the deaths of babies discovered, on average, that 72 percent of the 354 infant fatalities in their communities actually were accidental suffocations."

"“A huge percentage of sudden infant deaths will be found to be asphyxia if a proper death scene investigation 52 SHNS Special Report is done,” said Theresa Covington, director of the Michigan based National Center for Child Death Review Policy. “This is what the national evidence is leading us to. They are not homicides or anything else. They are accidental suffocations.” She predicted recognition of that truth will lead to a new infant safety campaign in America. “If we can get to the truth, then we can craft the right intervention strategies so that we can actually make a dent in the number of sudden and unexplained infant deaths. We are doing a disservice to the parents if we don’t tell them the truth,” Covington said. More than a decade after a national campaign to put babies on their backs to sleep resulted in a dramatic decline in SIDS deaths, experts say expanding that message to have babies always sleep alone and in a proper crib would easily prevent at least half of the infant deaths that continue today. The detection rate for asphyxia deaths has grown slowly over the years. Less than 4 percent of all infant deaths were found to be suffocation in 1992. But by 2004, the most recent year for which complete data is available, the rate had risen to more than 16 percent."

"> Authorities in Baltimore said 81 of the city’s 89 unexpected infant deaths occurred in unsafe sleeping conditions from 2002 to 2006. Nearly three-quarters occurred while co-sleeping."

"In the United States each year there are 4,000 unexpected and – until now – unexplained infant deaths. For more than 30 years the deaths tended to be attributed to the vague, catchall diagnosis called Sudden Infant Death Syndrome, still the official determination for more than half of all infant deaths. But a nine-month investigation by Scripps Howard News Service reporters Thomas Hargrove and Lee Bowman uncovered a harder and more painful truth: Most of these babies suffocated in completely preventable accidents. “These infants die because they are accidentally smothered by parents or other children who sleep with them or because they are placed in dangerously overstuffed sofas or heavily blanketed adults beds,” they found. An infant is no match for an adult rolling over in a deep sleep due to exhaustion or alcohol or drugs. Their conclusion – and the cure – may seem harsh but it is simple and straightforward. Babies rarely die while sleeping alone in a crib." 

A lot of times people want all sorts of studies from how many babies died as a direct result of bed sharing vs babies sleeping in a crib to how many babies bed share and survive compared to those who do not survive. The problem is we can't direct you to studies and data that does not exist. Often times a baby dies from an unsafe sleep environment but depending where the baby died could depend on what is put on the death certificate. The statistics of infant sleep related deaths has more to do with geography then science!!! You could have a baby who did from a true SIDS case but that coroner does not believe SIDS exists so refuses to even entertain the idea of that being the exclusion of death. Or you could have a baby who died from unsafe sleep and a coroner believes it was SIDS. The problem is when it comes to an autopsy they is no way to tell a baby who suffocates to one who dies of SIDS, which means we have to rely on proper and complete death scene investigations but often they are lacking! Some investigators use a doll re-enactment which has shown a clearer picture of how the baby died, in what sleeping position, and sleeping environment. Although, some investigators do not use this powerful tool. Another powerful tool is the CDC's SUIDI Form. It is an 8 page in-depth form to be used when an infant dies suddenly and unexpectedly but not everyone uses it. I personally believe if more did we would have a better understanding of the 4,500 infant sleep related deaths each year. We do not have a national standard protocol that has to be used my law so a lot of infant deaths and what they are labeled depends on the individuals doing it. My long winded point is we still have a lot more work to do on death scene investigations to have more accurate data on babies dying while sleeping. 

The picture above is the CDC"s SUIDI (Sudden Unexpected Infant Death Investigation) form that was revised in 2006. From the data I have been able to find only a small amount of states use this form as you can see in the picture below...



                                        This information can be found by clicking here



Here is what we do know over decades of babies dying while sleeping. We now have safe sleep guidelines from the AAP that follows...


Let me explain the difference between SIDS & SUID

SIDS- The term sudden infant death syndrome (SIDS) was first used at an international conference on the causes of sudden death in infants. The current definition of SIDS, developed in 1991, is the sudden death of an infant younger than one year that remains unexplained after a thorough case investigation, including a complete autopsy, examination of the death scene, and review of the clinical history. We need to remember that SIDS is NOT a cause of death, but an exclusion of death. That means that a SIDS diagnosis SHOULD ONLY be used when no other cause can be found. The problem is pathologists and medical examiners can not tell the difference between a baby who mysteriously dies compared to one who was accidentally suffocated! Many people think the difference will be shown on an autopsy but sadly, it doesn't That is why when an infant dies suddenly and unexpectedly it is crucial for a complete and thorough death scene investigation be done so we can find the answers why so many babies are dying in their sleep every year! According to the CDC on SIDS and SUID they said this...

"About 3,500 US infants die suddenly and unexpectedly each year. We often refer to these deaths as sudden unexpected infant deaths (SUID). Although the causes of death in many of these children can’t be explained, most occur while the infant is sleeping in an unsafe sleeping environment.
Researchers can’t be sure how often these deaths happen because of accidental suffocation from soft bedding or overlay (another person rolling on top of or against the infant while sleeping). Often, no one sees these deaths, and there are no tests to tell sudden infant death syndrome (SIDS) apart from suffocation.
To complicate matters, people who investigate SUIDs may report cause of death in different ways and may not include enough information about the circumstances of the event from the death scene."

 According to Dr. Dinesh Rao's Forensic Pathology page he says this about positional asphyxia that happens quickly..."In some cases, death is rapid due to of reflex cardiac arrest, and asphyxiation signs are absent. Environmental suffocation, congestion and cyanosis may or may not be present, petechial hemorrhages are rare." To learn more you can click here: http://www.forensicpathologyonline.com/e-book/asphyxia/suffocation-smothering

SUID- When an infant under the age of 1 year dies suddenly and unexpectedly, it is called Sudden Unexpected Infant Death (SUID).  Some of these deaths may be caused by suffocation, asphyxia, infection, metabolic diseases, heart problems, injuries (accidental or non-accidental), SIDS, or other reasons. In some cases, the death is considered to be from an undetermined cause.

We are learning through thousands and thousands of babies dying while sleeping that we are finding more babies are dying more from suffocation due to an unsafe sleep environment then those who were found in a safe sleep environment with no unsafe sleep factors that caused the death.  Which this tells us is that safe sleep saves lives and protecting your child from a sleep related death in the first 12 months is imperative and that is why safe sleep is so crucial to infants... Here are some pictures that may paint a picture of how bed sharing increases the risk of death due to unsafe sleep in infants!





The numbers do not lie...too many babies are dying every day, and thousands every year form something so easily prevented if we all realized the seriousness of why babies MUST be put in a safe sleep environment. This is why the recommendations are what they are because enough baby deaths have told us that safe sleep is a HUGE factor in why these babies are dying!!! I honestly believe if EVERYONE was educated on safe sleep practices and was 100% followed we would see a very big decrease in the over 4,000 infant deaths we see every year while they sleep! Safe sleep will save our babies and reduce the infant mortality rate in the U.S. that is caused by unsafe sleep. When we know better, we need to do better!!! Our children are our future so shouldn't we do everything to make sure they see the future and not die when they are just babies???

SAFE SLEEP SAVES LIVES.....



We do not want a baby to sleep alone in a dark room away from their parents. Please put your baby in their own sleep space that is appropriate and recommended for infants but do room share where the baby sleeps in your room so you are still there to meet their needs, but do NOT sleep with your baby and give them the best chance to make it to their first birthday. If you would like more information you can contact us on our FB page: www.facebook.com/pausesafesleep

Saturday, April 28, 2012

April 2012 Newsletter...

***Normally we would email our newsletter but we thought more people would see it if it was available on our blog.***


                                    April 2012 
PAUSE (Parents Against Unsafe Sleep Environments) Newsletter


                             PAUSE Babies:


             Please welcome to the world and to PAUSE these babies.
We welcome to the world Caleb Robert was was born March 5, 2012 
weighing 7 pounds and 7.5 ounces and 20 inches long. He is welcomed by his wonderful parents Jason & Jill and his 2 sisters who are just in love with their new baby brother Breah and Makailee. Caleb is a blessing to this family who has waited a long time for him.




******PAUSE'S 1st CONTEST**********


With the help of Halo SleepSack we are happy to announce we have our first contest for our fans to win a Halo SleepSack Crib Set to keep their baby safe. It is recommended not to use blankets or bumper pads in your baby's crib but it's hard to buy a crib set without buying these unneeded and dangerous items. Halo has come out with a crib set to keep your little one safe. it comes with a Halo Swaddler, a Halo SleepSack size small, 2 crib sheets, and a crib shirt, and comes in 6 different designs. It does not include blankets or bumper pads. Online the crib set would cost you $115.00 but right now we are offering 2 fans (one on our FB Fan Page and on Pinterest Page) For the contest rules and two chances to enter please click here. You may also vote for the babies sleeping safely pictures for the pinterest contest by Clicking here. To vote for contestants on FB click here. To vote click the like button 1 like = 1 vote. The contest will end on May 11, 2012 so make sure to get your entries in before than. We will announce the two lucky winners on May 18, 2012. Which means you have an extra week to vote for your favorites. If you vote for yourself on either contests, your vote will not be included. Once we announce the winners we will contact you to see which design you want (you can choose from 5 different designs) and Halo SleepSack will ship it directly to you. Good luck and happy voting ;)


A fan on PAUSE shared this picture with me and I thought it was just too cute! We often see pictures of the funny positions are babies and children get into but usually it is in an unsafe sleep environment. So that got me thinking we would love you to submit photos of your little ones in funny or weird positions but where safe sleep is being practiced. Please email us your pictures to pausesafesleep@gmail.com




Diana at 12 months old sleeping in her crib with her feet up. Silly girl ;)


Please head over to our fan page we have added 2 new notes of the guilt, sadness, and grief of families who lost their babies to unsafe sleep. 




A real problem is that the media (T.V. shows, parenting magazines, movies) and even stores that sell baby products are constantly displaying and showing unsafe sleep for infants. We need to change that. I would encourage everyone to print this flyer from First Candle and hand them out to local stores or have them printed in your local newspaper, and submit them to parenting magazines and educate the public on how crucial it is for parents and caregivers to see safe sleep environments to change how families create their own children's sleep environments. We lead my example so many if parents see it often enough they will start practicing what they see. http://www.firstcandle.org/cms/wp-content/uploads/2010/01/SafeSleep_ImageGuidelines.pdf


Each month we will be featuring a baby who's life was lost and how now their death is serving as a way to educate parents on how important safe sleep is and to show that what happened to them can happen to you if you do not follow safe sleep guidelines for your infants.

                             ****Angel of the Month****


      Carl MatthewTamburrino April 12, 1992 - May 1, 1992
His mother Sara was bed sharing with Carl when he died. His death was diagnosed as SIDS now years later Sara believes that it is possible he was too close to his mom and suffocated on her night gown. Sara now works for SIDS Resources in Missouri. They provide support for families who have suffered an infant loss and help educate their community on the importance of safe sleep for infants. Please find them on FB here: https://www.facebook.com/pages/SIDS-Resources/201711263186543. With Sara's loss, and her educational background she is an asset who knows first hand how tragedy can strike a loving family and now uses her experience to teach parents what a safe sleep environment looks like.

We are really getting into pinterest and have some new boards please follow us on Pinterest and check out our boards and if you would like to add a picture email us at pausesafesleep@gmail.com

Unsafe baby Products
Safe Nursery Ideas
Baby Sleeping Dangerously Award (Before We Knew It Was Was Dangerous



We would love to here stories from our fans if PAUSE has helped you and your little one in any way. We want to know that this page and our work is useful to our fans and would love to post a testimonial note. You can comment here or send us a message if some how we have helped you and your little one to sleep safely. you mail email us from our fan page or at pausesafesleep@gmail.com


From one of our new fans...

"Hello - I just so happened to come upon this page...I have a 6 month old son... every 

morning he wakes up at 6:30 and I put him in to the bed with me & my partner until about 

8ish and we all fall back to sleep....after seeing this & looking through the pictures of all the

little angels...tomorrow morning I will NOT be putting him in bed with us...even if he 

wakes at 4/5/6 I don't care id rather bring him downstairs to play then something awful 

happening to him...thank you for opening my eyes...you never know...you could of just 

saved my sons life." ~Maxime

Thank you Maxime for your words and for making sure your baby is sleeping safely.





                        Remembering Our Angels


                  We are remembering Carl this month on his 20th Birthday (April 12, 1992)




                        Remembering Corynn on her 4th Birthday (April 3, 2008)



Remembering Kirstyn on her 15th Birthday (April 10, 1997)


Remembering Charlie on his 3rd Birthday (April 19, 2009)

   

I will leave you with this little quote. I relate this with all of us at PAUSE and all our fans

 who try so hard to educate others...




Making A Difference
Once upon a time, there was a wise man who used to go to the ocean to do his writing. He had a habit of walking on the beach before he began his work. One day, as he was walking along the shore, he looked down the beach and saw a human figure moving like a dancer. He smiled to himself at the thought of someone who would dance to the day, and so, he walked faster to catch up. As he got closer, he noticed that the figure was that of a young man, and that what he was doing was not dancing at all. The young man was reaching down to the shore, picking up small objects, and throwing them into the ocean. He came closer still and called out "Good morning! May I ask what it is that you are doing?" The young man paused, looked up, and replied "Throwing starfish into the ocean." "I must ask, then, why are you throwing starfish into the ocean?" asked the somewhat startled wise man. To this, the young man replied, "The sun is up and the tide is going out. If I don't throw them in, they'll die." Upon hearing this, the wise man commented, "But, young man, do you not realize that there are miles and miles of beach and there are starfish all along every mile? You can't possibly make a difference!" At this, the young man bent down, picked up yet another starfish, and threw it into the ocean. As it met the water, he said, "It made a difference for that one."

                                *One by one we are saving babies lives*








Thursday, April 26, 2012

CONTEST: Win A Halo SleepSack Crib Set..... {Details}

On our fan page PAUSE (Parents Against Unsafe Sleep Environments)and our pinterest page Pause Sleep we are having a contest for 2 of our fans to win a Halo SleepSack Crib Set. Halo is being very generous to donate 2 of these crib sets to two lucky winners. If you bought this from their site it would cost you $115.00 but for a short time you have the chance to win one. I hope you are excited about this! I know we are :)


Designed with whimsical prints, the HALO® Safe Sleep Crib Set™ will help create a beautiful and safe nursery for your little one.  The American Academy of Pediatrics and leading safety organizations warn against the use of soft, loose bedding and bumpers in cribs. Instead of potentially dangerous comforters and bumpers, this award-winning five-piece Safe Sleep Crib Set contains only those things your baby needs to sleep safe and sound from the start: a coordinating SleepSack Swaddle (Newborn), HALO SleepSack wearable blanket (Small), two soft 100% cotton jersey fitted crib sheets and matching decorative skirt. Used by hundreds of hospitals nationwide, the HALO SleepSack is the #1 choice of hospitals and parents alike, and a portion of every sale goes to First Candle/SIDS Alliance and the Canadian Foundation for the Study of Infant Deaths.  This all-in-one crib set will give you everything you need for your nursery, and baby, to be as safe as they possibly can be!  
   
  • No loose blankets or bumpers, for safer sleep.  
  • Includes 2-in-1 adjustable SleepSack Swaddle that allows for swaddling arms in or arms out to ensure an easy transition to the SleepSack wearable blanket when it is time to stop swaddling. 100% cotton. Size newborn fits 6-12 lbs.  
  • Includes a HALO SleepSack wearable blanket that replaces loose blankets that can cover a baby’s face and interfere with breathing.  100% Cotton.  Size Small fits 10-18lbs.  It’s the #1 choice of hospital nurseries and used in hundreds of hospitals to help teach new parents about safe sleep.  
  • Two, 100% Cotton Jersey fitted crib sheets; one solid, one in coordinating print.  Plus, one coordinating decorative crib skirt.  
  • A favorite of parents, this set has been awarded the 2012 Parent Tested Parent Approved, NAPPA and Cribsie Awards.  


So how do you win one of these, well let me tell you. On our FB page click on the link provided and like our page. Then on the top right you will see a "message" button. Send us a message on why you believe safe sleep for a baby is so crucial. It shouldn't be more than 2 paragraphs long. We will then post it in our album FB Safe Sleep Blurb Halo SleepSack Contest Album. You may share this album on your wall and have your friends and family vote for you. To vote they have to like the picture. If you vote for yourself, it won't be counted.

For on Pinterest Contest follow us on pinterest and then take a picture of your baby sleeping safely or if you are pregnant take a picture of your safe nursery and email it to pausesafesleep@gmail.com. In the email include your name, your baby's name and the age they are. It will then be uploaded here: http://pinterest.com/pausesafesleep/contest-pictures-of-your-lo-sleeping-safely-or-saf/ Again share this link on your page and have your friends and family vote for your picture. To vote they have to like the picture.

The person with the most votes will win a Halo SleepSack Crib set and Halo will ship it directly to you. Now you can not win both contests as that wouldn't be fair, but you may enter both to double your chances of winning. You have until May 11, 2012 to get your entries in and we will announce the winners of both contests on May 18, 2012 (it gives everyone a week to vote for their favorite safe sleep blurb and safe baby/nursery photo). Make sure on FaceBook you are able to receive message from people not on your friends list so we can send you a message. Also keep on the look out on our FB Fan Page for us to announce the winners. We will then we will contact you to let you know you won and to get your mailing address to ship you the Halo SleepSack Crib Set.

This contest is only for U.S. residents. You can enter for someone who has a baby or who is expecting. What does a safe sleep photo look like? A picture of baby on their back, in a halo sleep sack, or dressed for the weather (no blankets, bumper pads, pillows, or stuffed animals in the baby's sleep environment. Baby must be sleeping in a crib, pack n play, or basinette. For a nursery photo there should be nothing in the crib but a fitted sheet.

If you do win here are the 5 designs you can choose from.






Good luck and get those entries in. The sooner you get them in, the sooner others can start voting :)

Sunday, April 15, 2012

Infant Sleep Related Deaths....SIDS and SUID

SIDS which stands for Sudden Infant Death Syndrome is a diagnose of exclusion. Which means that when a seemingly healthy infant dies an autopsy is performed to see if the infant's body leaves any clues to what caused a baby to die. A death scene investigation is also performed looking at the environment the baby died in. Where the baby was found. A crib, in an adult bed, on a couch, in a swing or maybe a car seat. They also look at what position the baby was in when it was found. They also receive medical records from the pediatrician or hospital if applicable. Parents or caregivers are questioned and give either a coroner, medical examiner, or death scene investigator the details leading up to the child's death. It becomes an investigation for these professionals to find out what happened to this baby and to be able to give parents answers to what caused their child's death. I personally believe infant deaths that occur when the baby is sleeping is probably one of the hardest deaths to diagnose. SIDS and other sleep related infant deaths are hard to determine because when talking about a baby dying from SIDS or SUID (Sudden Unexplained Infant Deaths) first of all their body is very small which makes it harder to find clues that will explain their death. Also if a baby dies from SIDS there are often no signs, which also happens to be true when an infant dies from suffocation like a parent who bed shares and somehow the child suffocates whether from a parental layover or something obstructing the baby's airway. Now if an adult suffocated there would be physical signs but an infant is so tiny than the signs you would typically find in adults you most likely would not see in an infant.

Let me give you a good example:
My son Jaleel died while we were bed sharing even though I was not over weight, on drugs, and had not consumed alcohol. I placed my son on a pillow and rolled over and went to sleep. Now the next morning the pillow was found on top of his body. Now when the coroner came and questioned me I did not tell him about the pillow, I was scared. So they had a missing piece to what caused his death so they had to work with the clues they had which was he was breastfed 2 hours before bed, he was alive when I went to sleep, he was put to sleep on his back, but was found on his stomach in the morning, we were bed sharing and what physical signs they found on Jaleel and the light pink froth that was found on the sheet, pillow, and the dried froth that was on his face, and his autopsy. Now his autopsy came back saying "Undetermined with a history of co-sleeping" Which basically means they believed he died as a direct result of bed sharing but they could not prove it so had to put his cause of death as "undetermined" My son suffocated from that pillow but even an autopsy couldn't determine if he suffocated. The medical examiner who performed my son's autopsy said that with an infant that small even under a microscope it is very hard to tell if a baby suffocated.

Now we have come a long way in twenty years. We know some rules to help provide a safe sleep environment  that could lessen the chances of an infant dying. Like back to sleep, putting your baby on their back to sleep EVERY TIME, even at nap times. Babies who are put on their back to sleep and then sometimes on their stomach have a higher risk of dying from SIDS than a baby who is always placed to sleep on their stomach. We are learning that blankets, bumper pads, fluffy bedding, and bed sharing increase a baby's chance of dying. We know breastfeeding is very beneficial to the baby in many ways including lowering the risk of SIDS, but breastfed babies die from SIDS too! We know that introducing a pacifier can also reduce the risk of SIDS, and that over heating can contribute to SIDS and having a fan in the babies room can help to circulate the air that also can reduce the risk of SIDS. The more babies die (sadly) provides us with more answers and ways to protect our baby while sleeping, but there is one problem I have found with all this knowledge. First of all you have the parents who will say this is a little over board and that she was raised sleeping on her stomach, with bumper pads, blankets and she survived. Yes this mom did but they are thousands out there that didn't. Just because you survived or your kids did doesn't make it okay not to practice safe sleep guidelines for your present or future children and grandchildren. We need to be better than previous generations who didn't have the knowledge we do. We need to practice safe sleep to lower the risk of infant death and also for the babies who died because without them we wouldn't know what we do today! Please don't let their deaths be in vain, please provide a safe sleep space for your baby so at least something good can come from their death.

Another issue I have is the Internet. Now the Internet can be an amazing thing and it can be a horrible tool also. If you google bed sharing or co-sleeping you will find many articles citing how dangerous the practice is and how great it is. Online everyone can write a status, a blog, an article where others can search which can be great but you need to consider the source when it comes to taking advice on how you raise your children. Dr.Sears & Dr.McKennaMcKenna are not trained in SIDS reduction, they aren't SIDS experts and do not know the dangers that bed sharing can cause to an infant. Dr.Sears advises parents to bed share because it worked for him & his wife. Now that is great that it worked for his family. I am glad he doesn't know the pain and guilt that comes with losing a child to a bed sharing accident, but just because his kids were lucky does not mean it is a safe practice. When you become a doctor you take an oath to do no harm. I am sure in these doctors minds they aren't doing harm but sadly they are. Now Dr.McKenna has made some outrageous statements like babies who bed share don't cry. I understand his point for saying this because the mom is right there to meet the baby's needs but ALL babies cry regardless of where they sleep. I bed shared with two of my children and they both cried. Any doctor who studies infant deaths and the causes will tell you that bed sharing is a deadly practice even when so called "safe bed sharing" is practiced. The stories I could tell you like the mom who lost her daughter at 5 hours old after a nurse put the baby on a pillow to help get her to latch on and it worked and mom and baby feel asleep next thing this mother knows her newborn is whisked away as they try to work on her. Could you imagine having your baby and announcing it on Facebook and then hours later you are informing everyone your baby died due to an uneducated nurse? Or the mom who knew the risks associated with bed sharing and just ONE time she put her son in bed while she nursed and they fell asleep and next thing she knows he is dead, he died while nursing and somehow suffocated. Or the mom who bed shared and placed stuffed animals on the floor near the bed in case her daughter fell off the bed, she did fall off and suffocated on those stuffed animals, or the mom who slept with her baby and in the morning her shoulder was pressed into his face. These stories are real, babies die to educated parents who thought they were doing the best thing for their baby and now they have to live without their child and life with a life of guilt and what ifs.

I have really gotten off topic of what I wanted this post to be about and I apologize for that! The problem with SIDS  is even after decades of research and infants dying we still can't pin point what is the factor that causes these babies to die. I believe SIDS is real and my heart breaks for anyone who loses their child, especially when you have no clues to why your baby suddenly and unexpectedly died but SIDS and other infant deaths have become a real problem on many levels. Let me explain what I mean. I hope I do not offend anyone, as that is not my intent. This is my personal opinion take it for what it's worth, remember what I said about sources on the internet. First of all, we need to stop using a SIDS diagnosis as this is what by baby died from, when really it's a syndrome of no one knows why my baby died. SIDS isn't a cause of death it's an exclusion of death. All these years and we still don't know why babies die, so it had to be called something and so SIDS is the name, but the term doesn't explain what the baby died of, it explains what the baby didn't die of.

Another problem I have it how SIDS & SUIDS are diagnosed. There is no nation wide protocol, they are no signs to point to a SIDS death. two babies die in different counties both unexplained and sudden infant deaths and yet one baby is labeled as SIDS and the other is labeled undetermined also know as an SUID death. The coroner or medical examiner can put what ever they believe caused the death which is easy to do when you don't have a definitive cause of death. These days it is rare (well not rare but not as common as it was even five or ten years ago) for an autopsy to say SIDS. M.E,'s (Medical Examiners) are using other terms instead like undetermined, SUID, cause unknown SUDI (Sudden Unexpected Death in Infancy), among others. I believe if a baby dies and they cannot find any contributing factors that caused the death then SIDS should be used! Now at the same time I do believe that SIDS is over diagnosed much like ADHD is. When your baby dies suddenly and at such a young age like in infancy parents are counting on the professionals who handle their baby's death to find the answers. No parent wants their child to have an autopsy performed but we don't have a choice as it is a state law when someone especially a healthy child dies. We expect to have answers that is why is it so crucial that the professionals gather all the information they can from all sources they can. Let me give you the opportunity to change how these deaths are handled and how they are classified. There is a bill we are desperately trying to get passed. The Stillbirth and SUID Prevention, Education and Awareness Act (S 1862/ HR 3418) is a bill that would provide education and prevention and a cause for stillbirths and for SIDS and SUID deaths would change so we have a standard across the board of how these deaths are examined and diagnosed please click on this link from the CJ for SIDS Foundation to learn more and to ask your local Representative to co-sponsor this crucial bill

I also have a problem with the terminology we use. There is a difference between bed sharing (when you sleep with a baby in bed with you) and co-sleeping (when the baby sleep next to you, but in their own sleep environment) also know as room sharing.  There is also a difference between SIDS and SUID. When an infant dies while sleeping we shouldn't assume the baby died from SIDS, because many babies do not die of SIDS. Sometimes a baby dies from a preventable death like from bed sharing, or a baby who dies from bumper pads, r blankets. These are not SIDS deaths but SUID, and yet when an infant dies the public assumes it is SIDS. We need to distinguish the difference between the different types of sleeping, along with the different types of infant deaths related to sleep.

Until we have better deaths scene investigations (and maybe that includes better training on what a SIDS death consists of and what a SUID death consists of) Now granted, I understand not all deaths are clear but sometimes we are labeling an infant death SIDS when is isn't and an SUID death when it isn't. How can we ever have better answers if these professionals put whatever they want down. This is their job and I would hope they can be professional regardless of their personal feelings. I believe many babies are dying from unsafe sleep and yet without the correct statistics on these deaths we will never have the answers. Regardless if it is SIDS or an SUID death there are steps as a parent or caregiver we can do to reduce the risk of death. You wouldn't risk placing your child in a car without a car seat, so don't risk your child's life while sleeping. Learn from the babies who have died so we would have better answers so your baby doesn't become a statistic. Think of it..babies spend most of their time sleeping, so wouldn't it make sense to protect them from hidden dangers while they do what they do best....{sleep} If you have any questions especially sleep related please do not hesitate to leave a comment, shoot us an email at pausesafesleep@gmail.com or find us on our FB page. Together we can make a difference by educating on safe sleep especially friends or family who are expecting a baby or who have infants and toddlers, by asking your Representative to co-sponsor the bill I mentioned above.  Let's worth together to dramatically reduce the infant mortality in our country and other countries as well. Our children are our future, what kind of future will we have if babies keep dying?

Tuesday, March 6, 2012

Successful Breast Feeding DOES NOT = Bed Sharing

The LLC (La Leche League) claims that bed sharing makes breast feeding possible and more successful according to many articles like this one that states their reasons for supporting safe bed sharing. I wonder if Barbara Sturmfels, has ever heard of Dayton West whose mother was following "safe bed sharing" guidelines. A mother who wasn't overly-tired, who exclusively breast fed, who was not using drugs of any kind, didn't drink, and isn't obese and yet she woke up one fateful morning with her shoulder pressed into her son's face. His death would have never of happened if she was properly educated on safe sleep and the dangers of bed sharing. What would Ms. Sturmfels have to say about Dayton's story? Or what about Neveah Litchfield whose mother was bed sharing and took every precaution to keep her daughter safe. She put stuffed animals on the floor next to the bed so if Neveah did fall off, she would be protected. One morning she did fall off that bed and landed on those stuffed animals and sadly she suffocated and died because her mom didn't know the dangers of bed sharing. The list goes on and on. There are many stories of moms who thought they were doing what was best for their children by listen to organizations like the LLC, Dr. Sears, & Dr.McKenna. A perfect example of that is Corynn Kernan. This is from Corynn's mother in her own words, "We planned on raising our daughter the same way we were raising our son in the attachment parenting style. No cribs with bars that resembled jail cells for us, no way! Our little one would know how important and loved she was by being as close to mom as possible at all times, especially for on demand night nursing."

This mom believed that  the best thing for her little girl was to bed share, and when Corynn was two months old she died from bed sharing! We want to believe nothing bad will happen to our babies, we try our best to protect them. We research and research on how to keep our baby safe. More and more families are bed sharing and so it only makes sense that before we bring our baby into the family bed we research how safe it is. Dr. Kames McKenna & Dr. Bob Sears tell their patients how safe bed sharing is and it is easy to find such articles like these that support and promote bed sharing:



The problem with articles such as these, is McKenna & Sears do not know how many babies die from bed sharing, they don't research how safe it is, because they are not experts on what is killing babies from SIDS & SUID'S. Did you know that Dr. Bob Sears recommends parents bed share because it worked for him & his wife, not because it is safer. 

Did you know that Dr.McKenna has done studies on bed sharing but in a labatory not in a family's own home, or in their own sleeping environment. McKenna has said some outrageous things when it comes to bed sharing, like babies who sleep with their mother don't cry. Now, I don't know about you but when I bed shared my kids cried to let me know they were hungry, how can McKenna who claims to know so much about babies who bed share and not even know they cry, like any baby who cries to communicate.

Now did you also know that parents who lost their baby to bed sharing after following these doctors (and I use that word loosely) advice refuse to even acknowledge them or their loses. They claim that babies only die from bed sharing if a mom is NOT following their so called "safe sleep" If they believed bed sharing is so safe then why do they have a disclaimer on their pages? 

Bed sharing is being lazy, and I can admit that because I use to be you! I breast fed so I didn't have to get up in the middle of the night to make a bottle and I bed shared so all I would have to do is roll over fed my daughter as we both fell asleep, thankfully she did survive, my son wasn't so lucky!

Did you know 80 % of babies who die from SIDS or SUID die while in an unsafe sleep environment. That bed sharing increases the risk of SIDS by putting a tiny helpless baby in unsafe sleep environment. We are suppose to protect our kids because they are too little to protect themselves. Some of the best mothers in the world, lost their babies by doing what they thought or were told was best!!! Did you know more babies die while bed sharing then babies who die sleeping in a crib? Did you also know you can breast feed successfully without bed sharing? Let me share a couple stories of mothers who breast fed and didn't bed share....


My name is Leslie and I am from Sydney Australia. I breastfed my son for 7 months and during that time I did not bed share. From day one when my son was ready for a feed I would get him out of his cot and take him into the lounge room to feed. I would feed him, settle then put him back to sleep. I had a few reasons for this. Firstly it was to not disturb my husband while he was sleeping as he had to get up early to work. In the early days I did try once to feed in bed but I found I was to sleepy and got straight out of bed! When I turned the tv on the time passed quicker and it would stimulate me to stay awake & being out of the bedroom made other things easily accessible like nappies, cloths, wipes etc!!
When I was pregnant with my son me and my partner discussed our thought on issues like these and for us when our son was up one of us was out in the lounge room with him!"

This is from a mom of three babies who breast fed without bed sharing. She writes....

"I became a mother at 17 years old to a happy healthy 5lb 14oz baby boy ... he was and is my word! He and his brother and sister. From the time I found out I was pregnant I wanted the best for him and that included breastfeeding. It would be a lie if I said it was easy because it wasn't. I fell asleep while nursing him when he was 4 days old. I woke up soaked in milk, he was soaked, and his dad was soaked. All of us were wet and sticky... that only happpend once I realized how dangerous that could have been! So from that point on when it was time to get up and nurse I would get a tall glass of ice water (as you become very thirsty in the first few months of breastfeeding). I would either go to the rocking chair or just sit up in bed if I wasnt extremly tired. Never nurse while laying in bed it is too easy to fall asleep when your tired.  I would turn the tv on or I would sing to him while he ate. I would burb, change and back to his pack n play that was pressed against my bed where I could see him without having to get up. I could reach over and touch his chest to make sure he was ok, but never again in my bed. I did the same with all three of my children. I hear a lot of mothers that claim they bed share because of bonding or because it's "safer" or because they want them close. I am here to tell you that you can bond while breastfeeding and not bedsharing. I have 3 times they even have beds that connect to yours so your baby is close to you and safe from the bed time thrashing we all do in our sleep! I have nursed all three of my beautifull babies and support breastfeeding and extended nursing also. What I do not support is LLC condoning bedsharing or telling anyone that it is safe because it isn't!"

Breast feeding can be successful without placing your baby in your bed to sleep. Babies have suffocated while breast feeding and bed sharing, why not bond with your baby while nursing (nursing is so special and something only you can give your baby) It's another way to bond instead of falling asleep while they eat. You wouldn't prop up a bottle if your baby was formula fed so why are you "propping up your breast". They grow up so fast, spend anytime with them you can including feeding. Not to mention newborns and older babies need their diaper changed when they wake up for their feedings, so get out of bed change the baby and nurse and read them a book, sing a song, or just talk to them. Because you can't bond when you both are sleeping!!!




Sunday, January 1, 2012

How do we change minds...

I have been educating parents and caregivers on how to create a safe sleep environment for infants and even toddlers for almost two years now. PACS (Parents Against Co-Sleeping) was created we have since removed that fan page and have created PAUSE (Parents Against Unsafe Sleep Environments) a group that educates on how to provide a safe sleep environment for infants because putting your baby to sleep right, helps ensure they make it through the night!

If you are a member of PAUSE or know me it is no secret why I am so passionate about safe sleep for infants, but if you don't know I will enlighten you. My son Jaleel was my third child and I bed shared with him and he died from accidental suffocation while bed sharing. I bed shared unsafely and the result was my 26 day old son died. I did not consume alcohol, was not under the influence of drugs (illegal or over the counter), and I am not obese nor were there anyone in the bed besides myself and my son. I bed shared unsafely because I placed my son on a pillow one time and it only took that once to end his life. It is most likely I rolled over on him based on the position of him and the pillow. Now I have been told by many people who advocate or practice bed sharing that I should educate on how to safely bed share instead of saying no bed sharing. I will agree that if you practice so called "safe bed sharing guidelines" you may decrease the risk of death by a small percent but the only way to reduce the risk of death by 100 % from bed sharing, is not to bed share. In my experience the people who yell the loudest about how bed sharing is beneficial and can be done safely are the same ones who are practicing the unsafest bed sharing practices. That is why my son's story is crucial because it shows what CAN and DOES happen not only when you bed share but when you do so UNSAFELY! I see parents constantly posting pictures of infants bed sharing and not following safe bed sharing guidelines. Examples: Dad bed sharing with baby, siblings in bed with baby, fluffy blankets and pillows near the baby's face, parents falling asleep with their babies in recliners and sofas just to name a few. Not one of these scenarios are safe ways to bed share. I know parents who put their baby to sleep on pillows...the only difference between those babies and mine is that those babies survived! We all need to take responsibility for creating a safe sleep environment for babies and educating parents and caregivers on what a safe sleep environment looks like compared to what an unsafe one looks like. Many parents and even child care providers are unaware of the dangers of a baby sleeping in an adult bed (even if they are the only ones in the bed) or things that should never be part of a baby's sleep space like bumper pads, stuffed animals, blankets, soft mattress or bedding and that is why PAUSE exists so you have a place to get information on how to protect your baby while they are sleeping.

Now like I have stated I have a personal issue to spread the word on safe sleep. I love what I do even though I do not get paid for it. Now when you are a bereaved parent who lost their child to a preventable death you want to tell everyone how dangerous it is and there is a safer way. Like bed sharing is dangerous and a safer way is to room share, but not everyone is willing to listen and that is to be expected. A friend posted a podcast by Carol Tavris "Mistakes Were Made" It was very interesting. It talks about the Theory of Cognitive Dissonance which is when a discomfort caused by holding conflicting cognition's (e.g., ideas, beliefs, values, emotional reactions) simultaneously. In a sate of dissonance, people may feel surprise, dread, guilt, anger, or embarrassment. The theory of cognitive dissonance in social  psychology proposes  that people have a motivational drive to reduce dissonance by altering existing cognition's or adding new ones to create consistency. Basically this means that even when people are shown evidence supporting a different opinion or theory of their own they cling to their opinion and research because they cannot believe or accept that bed sharing is dangerous and they are putting their child's life at risk, so instead they stick to their beliefs and may even believe even stronger when someone tries to challenge their own beliefs or thoughts. They believe bed sharing is safe and they have their own research to back it up. They have to believe their way is the right way, that is it beneficial to not only their baby but to their relationship as parent and child.

Now I have learned a lot in the almost two years I have been advocating for safe sleep for infants. In the beginning I believed everyone who heard the story of my son and his untimely death would have no choice but to agree with me, I found out all too quickly that this is not the case. Although, people sympathize with my loss and feel it is sad they do not believe what happened to me would happen to them. So once again they live in denial and convince themselves that I must have done something wrong that caused his death because very rarely do babies die from bed sharing. Then I realized I need to get them to listen at any cost and there are few tactics to get your point across. One way is the fear based approach where you try to scare them into not bed sharing. Although this may work for some it will not work for everyone and we don't want people to not bed share based on fear we want them to see the statistics and facts and come to the same conclusion we have that bed sharing is a very risky and deadly practice for infants. Then there is the guilt approach where you play the grieving mother card which only makes you look desperate and possibly a nut case who is in need of therapy ASAP. I have used this card many times when people just were not listening. I would try and make them understand the reality that has become my life. Then there is the anger approach where you are now seeing read and you are DETERMINED to MAKE them see it your way!!! None of these approaches work and I would not suggest any of them, a lesson I have learned the hard way. Some people will not listen even if it's approached in a positive way because they believe bed sharing to be safe and nothing you say will change their mind. You need to accept that, but maybe you will educate someone and they will listen and choose room sharing over bed sharing and that is why we do this. Even if only one baby is ever saved, consider it a job well done.

Now I have told you why people stick to their beliefs and the approaches that will most likely not change a person's mind so you may be asking how do we get them to realize the truth. First there are a few things to consider... 1. No one likes to be told they are putting their children's life in danger or felt as though they are not a fit parent, they are stupid, or feel as though they are being attacked. Anyone who is being belittled or feels they are being attack while put up their wall and will not listen to anything you say regardless if you have facts to back it up. So how do we educate without making parents feel we are questioning their parenting skills. We need to present facts of why bed sharing is unsafe while being respectful and compassionate. Remember most of us all bed shared at once so we understand why these parents would do it but we need to educate them so they do not become us. Anger and fear is not the way to do this! Let them know you understand where they are coming from but a lot of research has been done and we are learning more and more. 10, 20, 30's years ago we didn't know what we know now. We didn't know bumper pads, sleep positioners, tummy sleeping, and blankets were dangerous. A lot of lives have been saved due to research and to past babies dying so we could learn more. We now know that bed sharing increases a baby's chance of not making it to their first birthday. We aren't here to judge you, but just to give you the correct information so you can make the best choice for your baby while they are sleeping, after all babies spend most of their days/nights sleeping. Let's work together and protect babies from preventable deaths like an unsafe sleep environments, and make sure we are reaching people through respect, compassion, and understanding. Maybe if we change our approach we can save even more babies lives!!!! Something to think about it!!!